Abstract:
To explore and assess the magnitude of stigma and its impact to palliative care giving.
Objective: To involve the palliative caregivers in exploring the impact of stigma in their care giving.
Materials and Methods: The study was exploratory in nature and used attracted qualitative design and
interviewed 82 palliative caregivers in 10 focus groups using an interview guide as a data collection instrument,
and five CHBC nurses on one-to-one in-depth interviews, still guided by an interview guide that differed only
slightly with the one for the caregivers.
Results: The study findings revealed that stigma and discrimination was immensely perfidious due to:
(1) Discrimination against caregivers by the service providers, especially at the Kanye referral hospital;
(2) Refusal of youth to help the elderly caregivers; (3) Shunning of government assistance packages by
caregivers and their clients; (4) Caregivers secretly taking away their clients to faraway places for assistance;
(5) Caregivers and their clients turning to alternative therapies from the traditional healers; (6) Caregivers and
clients having inadequate assistance.
Recommendations: We recommend strong anti-stigma education and campaign by the government,
non-governmental organizations (NGOs) and all the civil society bodies and campaigners.
