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Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients? [Perspectives]

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dc.contributor.author R, Zachariah
dc.contributor.author A. D., Harries
dc.contributor.author H., Kanyerere
dc.contributor.author Kirui, N
dc.contributor.author Sharath, B. N.
dc.contributor.author Hinderaker, S. G.
dc.contributor.author Ali, E.
dc.date.accessioned 2020-07-27T07:56:02Z
dc.date.available 2020-07-27T07:56:02Z
dc.date.issued 2012
dc.identifier.uri https://doi.org/10.5588/ijtld.11.0635
dc.identifier.uri http://ir.mu.ac.ke:8080/jspui/handle/123456789/3105
dc.description.abstract The words ‘defaulter’, ‘suspect’ and ‘control’ have been part of the language of tuberculosis (TB) services for many decades, and they continue to be used in international guidelines and in published literature. From a patient perspective, it is our opinion that these terms are at best inappropriate, coercive and disempowering, and at worst they could be perceived as judgmental and criminalising, tending to place the blame of the disease or responsibility for adverse treatment outcomes on one side—that of the patients. In this article, which brings together a wide range of authors and institutions from Africa, Asia, Latin America, Europe and the Pacific, we discuss the use of the words ‘defaulter’, ‘suspect’ and ‘control’ and argue why it is detrimental to continue using them in the context of TB. We propose that ‘defaulter’ be replaced with ‘person lost to follow-up’; that ‘TB suspect’ be replaced by ‘person with presumptive TB’ or ‘person to be evaluated for TB’; and that the term ‘control’ be replaced with ‘prevention and care’ or simply deleted. These terms are non-judgmental and patient-centred. We appeal to the global Stop TB Partnership to lead discussions on this issue and to make concrete steps towards changing the current paradigm. en_US
dc.language.iso en en_US
dc.publisher International Union Against Tuberculosis and Lung Disease en_US
dc.subject TB en_US
dc.subject Loss to follow-up en_US
dc.subject Suspect en_US
dc.title Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients? [Perspectives] en_US
dc.type Article en_US


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