Abstract:
Introduction: Disclosure of HIV status to children is essential for disease management but is not well characterized in
resource-limited settings. This study aimed to describe the prevalence of disclosure and associated factors among a cohort
of HIV-infected children and adolescents in Kenya.
Methods: We conducted a cross-sectional study, randomly sampling HIV-infected children ages 6–14 years attending 4 HIV
clinics in western Kenya. Data were collected from questionnaires administered by clinicians to children and their caregivers,
supplemented with chart review. Descriptive statistics and disclosure prevalence were calculated. Univariate analyses and
multivariate logistic regression were performed to assess the association between disclosure and key child-level
demographic, clinical and psychosocial characteristics.
Results: Among 792 caregiver-child dyads, mean age of the children was 9.7 years (SD = 2.6) and 51% were female.
Prevalence of disclosure was 26% and varied significantly by age; while 62% of 14-year-olds knew their status, only 42% of
11-year-olds and 21% of 8-year-olds knew. In multivariate regression, older age (OR 1.49, 95%CI 1.35–1.63), taking
antiretroviral drugs (OR 2.27, 95%CI 1.29–3.97), and caregiver-reported depression symptoms (OR 2.63, 95%CI 1.12–6.20)
were significantly associated with knowing one’s status. Treatment site was associated with disclosure for children
attending one of the rural clinics compared to the urban clinic (OR 3.44, 95%CI 1.75–6.76).
Conclusions: Few HIV-infected children in Kenya know their HIV status. The likelihood of disclosure is associated with
clinical and psychosocial factors. More data are needed on the process of disclosure and its impact on children.