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DC Field | Value | Language |
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dc.contributor.author | Njuguna, F. | - |
dc.contributor.author | Mostert, S. | - |
dc.contributor.author | Seijffert, A. | - |
dc.contributor.author | Musimbi, J | - |
dc.contributor.author | Langat, S. | - |
dc.contributor.author | Burgt, R. H. M. van der | - |
dc.contributor.author | Skiles, J. | - |
dc.contributor.author | Sitaresmi, M. N. | - |
dc.contributor.author | Ven, P. M. van de | - |
dc.contributor.author | Kaspers, G. J. L. | - |
dc.date.accessioned | 2023-07-04T08:57:50Z | - |
dc.date.available | 2023-07-04T08:57:50Z | - |
dc.date.issued | 2014-10-17 | - |
dc.identifier.uri | http://ir.mu.ac.ke:8080/jspui/handle/123456789/7729 | - |
dc.description.abstract | Purpose Our study explores socioeconomic, treatment-relat- ed, and psychological experiences of parents during cancer treatment of their children at an academic hospital in Kenya. Methods This cross-sectional study used semi-structured questionnaires. Parents whose children came for cancer treat- ment consecutively between November 2012 and April 2013 were interviewed. Results Between 2012 and 2013, 115 oncology patients attended the hospital and 75 families (response rate 65 %) were interviewed. Cancer treatment resulted in financial dif- ficulties (89 %). More information about cancer and treatment was required (88 %). More contact with doctors was needed (83 %). At diagnosis, cancer was perceived as curable (63 %). However, parents were told by health-care providers that most children with cancer die (49 %). Parents had difficulties with understanding doctors’ vocabulary (48 %). Common reasons to miss hospital appointments were travel costs (52 %) and hospital costs (28 %). Parents (95 %) used complementary alternative treatment (CAM) for their children. Health-care providers told parents not to use CAM (49 %). Parents had not discussed their CAM use with doctors (71 %). Community members isolated families because their child had cancer (25 %), believed that child was bewitched (57 %), advised to use CAM (61 %), and stopped conventional treatment (45 %). Some families (15 %) never disclosed the child’s illness to community members. Parents shared experiences with other parents at the ward (97 %) and would otherwise not understand the disease and its treatment (87 %). Conclusions Parents suffer financial hardships and are dissatis- fied with doctors’ communication regarding their children’s con- dition. CAM is very commonly used. Doctors need to improve their communication skills and discuss CAM more openly. Can- cer programs should include more support for parents: financial assistance, a facility where parents and children can stay during the course of therapy, and parent support groups. | en_US |
dc.language.iso | en | en_US |
dc.publisher | Springer | en_US |
dc.subject | Childhood cancer | en_US |
dc.subject | Treatment-related experiences | en_US |
dc.subject | Socioeconomic experiences | en_US |
dc.subject | Psychological experiences | en_US |
dc.subject | Physician communication . | en_US |
dc.subject | Complementary alternative treatment | en_US |
dc.title | Parental experiences of childhood cancer treatment in Kenya | en_US |
dc.type | Article | en_US |
Appears in Collections: | School of Medicine |
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File | Description | Size | Format | |
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NJUGUNA F.pdf | 297.72 kB | Adobe PDF | View/Open |
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