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DC Field | Value | Language |
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dc.contributor.author | Meslin, E.M. | - |
dc.date.accessioned | 2020-07-28T07:44:39Z | - |
dc.date.available | 2020-07-28T07:44:39Z | - |
dc.date.issued | 2010-04 | - |
dc.identifier.uri | http://ir.mu.ac.ke:8080/jspui/handle/123456789/3143 | - |
dc.description.abstract | With the domestic and international proliferation of bio- banks and their associated connections to health informa- tion databases, scholarly attention has been turning from the ethical issues arising from the construction of biobanks to the ethical issues that emerge in their operation and man- agement. Calls for greater transparency in governance struc- tures, coupled with stern reminders of the value of main- taining public trust, are seen as critical components in the success of these resources. Two different approaches have been adopted for addressing these types of ethical issues: the first is a ‘top-down’ approach which focuses on develop- ing policy, procedures, regulations and guidelines to aid de- cision-makers. The second is a ‘bottom-up’ approach, which begins with those who are most affected by the issues and attempts to inductively develop consensus recommenda- tions and policy. While both approaches have merit, I argue that more work needs to be done on ‘bottom-up’ strategies if trust and transparency are to be more than mere slogans. Using 2 case examples from Indiana, the paper summarizes data from a set of surveys we recently conducted that ad- dress issues arising from biobanks that provide some insight into issues associated with trust and transparency. | en_US |
dc.language.iso | en | en_US |
dc.publisher | Ampath | en_US |
dc.subject | Biobanks | en_US |
dc.subject | Governance ⴢ | en_US |
dc.subject | Ethics | en_US |
dc.title | The Value of using top-down and bottom-up approaches for building trust and transparency in Biobanking | en_US |
dc.type | Article | en_US |
Appears in Collections: | School of Medicine |
Files in This Item:
File | Description | Size | Format | |
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Meslin E.M. .pdf | 180.14 kB | Adobe PDF | View/Open |
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